The Stomp
January 2010

Welcome to The STOMP!, the newsletter dedicated to stomping out stigma by providing education and raising awareness about mental health issues.

Mental Health Rights and Advocacy
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In celebration of Martin Luther King, Jr. Day and his passion for civil rights, we thought it would be fitting to find something on mental health advocacy that would both inspire and empower you. The following letter was written in 2006 in response to an article (“A Statement of Madness”) written by a psychiatrist who called SAMHSA’S Consensus Statement on Mental Health Recovery “a travesty of psychiatric care.”

Before you read the letter, we’ll share a quote with you. A professor at Yale University described the recovery model remarkably.

“In the medical model, you take a person with a mental illness, you provide treatment in the hopes of reducing symptoms, and then they're supposed to approximate some notion of normality. Our research shows the opposite. You take a person with a mental illness, you then reduce the discrimination and stigma against them, increase their social roles and participation, which provides them a reason to get better in the first place, and then you provide treatment and support. The issue is not so much making them normal but helping them get their lives back." 
- Larry Davidson

Be inspired! Advocate!

May 5, 2006

Dear Sally:
I’ve noticed over the past couple of weeks that you and your allies had renewed your media campaign to undermine the rights of people with mental illnesses, and to suggest to the public that forced treatment is the only kind that will work for large numbers of people.   I wonder whether this decision by the New Mexico and Maine legislatures to reject involuntary outpatient commitment might be fueling some anxiety on your part that the tide was turning against forced treatment.

We can all agree on the objective:  helping people with serious mental illnesses lead stable, productive lives in the community.  Beyond medication, that will require stable housing, employment opportunities, and the chance to live, love, and learn with friends and family.  Research suggests that these supports yield better results, for individuals and for society.  Those states with higher rates of hospital and outpatient don’t necessarily produce the best outcomes for people with mental illnesses.

There is a lot of good, hard science available about what works in terms of mental health treatment, but reading your recent article belittling the Consensus Statement on Mental Health Recovery from the federal Substance Abuse and Mental Health Services Administration [“A Statement of Madness,” National Review Online, April 5, 2006], I was convinced I thought I had arrived in the Land of Oz. 

Why?   Because, in oversimplifying mental illnesses and SAMHSA’s response, you constructed a straw man with no brain, no heart and no courage.  That’s why knocking him over was so incredibly easy.  But your criticism gets us no closer to a solution for the many poor people in this country who rely on the public mental health system for the services and supports they need to succeed in the community.

No Brain.   Your article revives that old canard about half the people with psychotic disorders lacking “insight” into their illnesses.  I’ve never understood where you found that statistic, or how you can insist on its validity given the remarkable success of programs like Pathways to Housing [see www.pathwaystohousing.org] and the so-called “AB 34” programs in California [see www.ab34.org], that are successfully engaging “the most severely disabled” (to use your term) people with mental illnesses.  Employing the very conservative principles of self-direction, empowerment and personal responsibility that you deride in the Consensus Statement, these programs are producing much better outcomes than those that feature compulsory medication. The recovery model is alive and well in this country; you would do well to acknowledge its successes.

No Heart.   You were appointed to the Advisory Council for the Center for Mental Health Services at SAMHSA by a president who champions “compassionate conservatism,” but your article trashes the “recovery” orientation of his New Freedom Commission on Mental Health.  What would you recommend in its place?  Your published writings suggest you favor a broad spectrum of programs that involve involuntary treatment, including court orders for outpatient commitment, mental health courts and other forms of “leverage” to overcome the “treatment resistance” of people with severe and persistent mental illnesses.  In your willingness to inject coercion into mental health treatment, you ignore the creative ways in which mobile outreach and assertive community treatment (ACT) are being coupled with supportive housing to yield good life outcomes without force. 

No Courage.   The seminal contribution of the New Freedom Commission was its articulation of an unspoken truth:  “millions of dollars are spent unproductively in a dysfunctional service system that cannot deliver the treatments that work….”   [see http://www.mentalhealthcommission.gov/reports/Final_Interim_Reportdoc ].  We can’t—as your article advocates—reduce mental health to the question of whether someone “takes his medications.”   But we’ve tried it your way, and it doesn’t work.  Thinking people realize that real mental health depends on a broad array of personal relationships, personal strengths and professional support.  Any new vision of public mental health will upset some apple carts.  And I understand how unsettling it must be to you, as a psychiatrist, to be faced with a paradigm shift that reduces the role of medical experts in the field of mental health.  We all need to display more courage in our willingness to look at new treatment modalities that might actually work better.

Americans are hungry for new approaches to government programs.  In areas like public education, conservatives have championed school vouchers, arguing that it is important to put purchasing power in the hands of the consumer.  This, they point out, would have the salutary market effect of improving good schools and driving bad ones to reform or fail.   Putting mental health dollars and decision making in the hands of people with mental illnesses makes the same good public policy sense, and SAMHSA’s Consensus Statement on Recovery sensibly recognizes that.

Sally, I invite you to join us in building a public mental health system that is as good as the American people it is meant to serve.  We’re not in Kansas anymore.  We’re perched on the edge of a new world, and a new vision of public mental health.

Sincerely,

Michael Allen
Senior Staff Attorney
Bazelon Center for Mental Health Law
Washington, DC  20005-5002

(Michael Allen is no longer working for the Bazelon Center for Mental Health Law, but continues his work as an advocate to this day!)

Source: National Stigma Clearinghouse News Archive, 2006; www.stigmanet.org

Success Story: Kimberly Rider
Welcome to the Newest Member of the CNS Anti-Stigma Team!
By Amy Yashinsky and Emily Smith

New MemberKimberly Rider began working with the CNS Anti-Stigma team on December 14, 2009. She brings with her a strong marketing/business background. Currently, she is in school working towards her Bachelors degree in Nursing. Kim’s life experiences have given rise to her strong desire to help others.

Kim has dealt with mental health issues of her own as well as those of her family members. She also has first-hand experience with the toll that substance abuse issues take on a family. She grew up in what she described as a “dysfunctional home”. At a very young age, she felt as though she was “on her own” and deeply wanted to “fit in” somewhere. Changing schools, dealing with her own depression, and having to deal with her mother attempting suicide, Kim found that her home life was crumbling, and her school life wasn’t much better. Looking back, she can see that her depression began when she was 13 or 14 years old, and, until recently, had remained untreated. Kim sought help when she finally felt “sick and tired of feeling sick and tired.”

Kim believes that through her work at CNS, she will also work through the self-stigma she’s experienced. She has, at times, felt that she doesn’t measure up. She knows that it’s only the stigma talking and not the truth, but it still hurts. She hopes that by working with others and sharing her story, she will learn that truth; that she does measure up and is good enough. She realizes that so many people are quick to judge and said, “you become labeled as different. I am excited that I can educate others on how to be aware of the truth about mental health issues, and that we are all human and have feelings.”

Kim has learned through her trials that she can persevere. “I want to encourage others. If I can do it, they can do it,” says Kim. She wants people to know that they can rise above and persevere, too. She has found that although her life has had its tough times, she has so many things to be thankful for, including friends, school, and her four year old daughter, Adrianna.

We are very excited to welcome Kim to the Anti Stigma Team! We look forward to all that she has to offer not only to our team, but to the community at large. Welcome, Kim, we’re so happy you’re here!

I Have a Dream
By Jacqueline Castine

JackieAs we have all been inspired by the vision and sacrificial life of Dr. Martin Luther King, Jr., many of us who have suffered the tragedy of mental illness in our own lives and/or that of a family member, also have dreams of a future when medical science and social attitudes will put an end to the discrimination in mental health care and in the public perception of people who are in recovery from mental illness and addictions. As a community mental health educator, a woman who is living with bipolar disorder and a mother who lost her son to suicide, I invite you to join me in the vision that I hold for the future of mental health understanding, funding and treatment.

  • I have a dream that one day soon health care reform legislation in this country will cover mental illness, addictions and other behavioral diseases of the brain as fairly and equally as other biologically based physical illnesses. Any engine driving national health care reform without mental health parity is on an uneven track, discriminating against 1 in 4 U.S. citizens.
  • I have a dream that Michigan will join the majority of its sister states in abolishing separate funding systems for substance use health issues and mental health. As it stands, our mental health system struggles to deal with the costly recidivism in our hospitals caused by lack of coordinated communication, clinical training and integrated treatment for persons with co-occurring substance use and mental illness.
  • I have a dream that one day the Silver Ribbon, the symbol for brain disorders developed and disseminated by NARSAD, (National Alliance for Research on Schizophrenia and Depression) will be as well recognized and well-funded as the Pink ribbon, the symbol for breast cancer.
  • I have a dream that when Joe Q. Public reads the ever occurring “shock and awe” headlines about mass murder, a mother drowning her babies, or a youth shooting his parents in their sleep, he will be able to go beyond the very natural and appropriate, moral, social and legal implications of such atrocities, to ask, “What about the medical issues in this situation? What is the mental health history of this individual and what proper medical treatment could have prevented this abominable tragedy?” The more the media, can assist mental health educators and advocates in always stressing the differences in thought, mood and behavior between treated and untreated brain disorders, the more millions of people in recovery from mental illness will be admired, not stigmatized.

  • I have a dream that tax paying voters will, through education, convert righteous indignation into motivation to learn more and contribute more money to brain research and mental health care treatment and advocacy.
  • As a parent who lost her first born son to suicide 2 years ago I am furious at the devastation of these diseases too! I will jump through hoops when medical science develops a one stop shop shot that will instantly rearrange the crazy chemistry in the broken brain with enough temporary sanity to convert a state of mind that self-talks “I’m not sick and I don’t need help,” to “I realize I have an illness that can be treated and I know where to go for help today.”

For help with mental health services in Oakland County please call our Resource and Crisis Helpline (800) 231-1127.

Jacqueline Castine is the community education specialist at the Oakland County Community Mental Health Authority . Her fall class schedule is posted at www.jacquelinecastine.com. She is the author of I Wish I Could Fix It, But. . . She can be reached at castinej@occmha.org and 248-975-9684.


Monthly Footprints
By Malkia Maisha Newman

STOMP OUTThis December was not nearly as busy as other months have been. This gave us the time we needed as a team to re-evaluate and recreate ourselves for the New Year. Much time was given to developing new strategies to reach the youth which are one of our target populations.

The new program about employment readiness was done for the Employment Dinner at Visions. It was very well received by the members of the Employment Club,
The team spent a very special time with Tata Technologies. We gave a presentation during their Holiday Celebration. We learned some very interesting things about Tata Industries and their Corporate Social Responsibility Committee. This group really takes Social Responsibility seriously. (See article on Holiday Reflections).

Our two reoccurring programs, one for the New Hire Orientation at the Oakland County Community Mental Health Authority and the other for the Day Program for St. Joseph Mercy-Oakland were done. There is always a great crowd in both places that look forward to us coming.
The members of the CNS Anti-Stigma Program are looking forward to bigger and better things in the coming year.

Stigma In Action: Stigma Turned Inward
By Emily Smith

SuccessWhen I was a teenager and was dealing with something tough, someone told me that the good thing about seasons is that they always change. Translation: the difficult time I was going through wasn’t going to stick around forever. It was a season in my life, and I would get through it. I can’t even begin to remember what was going on at the time, but I do remember that piece of wisdom. I have recalled those words many times.

I was diagnosed five years ago with bipolar disorder. I have been hospitalized so many times that I’ve felt beyond discouraged. I’ve had my seasons of pain and my seasons of peace with this disorder. I have at times identified myself as this illness and then realized that I am NOT my illness. I have been balanced and stable, up or down. I have experienced it all.

Stigma is both external and internal. I have experienced both, but it’s the internal garbage that I am always wrestling with. Mental health disorders are medical conditions; brain disorders; chemical imbalances. They are not anyone’s fault. You see? Oftentimes we blame ourselves for something beyond our control. I know I did. I was embarrassed. I was discouraged. I felt “less-than.” It is something that I experienced when I was first diagnosed, but I still deal with it from time to time.

I want to share with you an entry from my journal, dated November 14, 2004; one month after I was given the diagnosis. The feelings are very raw and very real. I was blaming myself for my illness. I was feeling so much guilt and shame…and was very deeply hurt.


“It’s all your fault,
No one else but you.”
My mind self-destructs;
Hopeless, angry, dying inside.

“No one understands you.
They never will.”
More lies destroy me;
Bitter, worthless, self-hate.

“You’re all alone.
Life is a joke.”
The untruth besets.
The belief consumes me.

“What is the ‘purpose’ anyway?”
The thought eats me alive.
The hope dying inside.

“I’m broken here,
Can’t anyone see?”

One thing I learn from looking back at these journal entries and remembering that piece of wisdom about seasons always changing is that I can see where they did! Where I was once hopeless, I can look ahead and read to where hope began to bloom. The next journal entry was dated January 12, 2005.

Acceptance, acceptance, acceptance.
Life isn’t great all the time.

Am I okay with my present situation?
Hmmm…. I’m trying to be.
I wish it weren’t like this, or that life wasn’t always this way.

But... it is. So…
Allow, allow, allow.

Can I do that?
I’m scared.
I guess I just want to know why.
Why me? Why this? Why now?
Why?

I want to never forget that this is where I am.
This experience is uniquely mine
And that’s okay.
I think I’m almost proud of that.
All mine. All me.
This is history in the making;
My life.

I still had questions, the question of “WHY?”…but the season had changed. My hope was beginning to return and the self-stigma, the blaming, the guilt; it was beginning to dissolve.



Holiday Reflections
By Guest Columnist Malkia Maisha Newman

StarThis past December I was able to witness first hand the spirit of holidays being played out in a couple of different ways. I witnessed 2 different situations that greatly improved my hope that we will overcome our differences and do something for the greater good.

First I would like to talk about Tata Technologies of Novi, MI. The CNS Anti-Stigma Program was asked to come and do a presentation for the employees during their Holiday Celebration. I learned that for the past 5 years the staff of Tata Technologies had “adopted” the CNS Young Adult Program (YAP) and had given gifts and money to help further the work that Wendy Manus and the other YAP staffers are doing and to make the holidays a little brighter for some of the people who are a part of the YAP program. If that was not enough, Tata Technologies has been matching the funds that the employees give sometimes to the amount of nearly $2,000 additional funds.
Karin Cress, a high-school friend of Wendy’s, knew of the great work that was being done and wanted to help in some way. What started out as a lunchtime knitting club eventually transformed into the Corporate Social Responsibility Committee. The group is growing in numbers and in the amount of money that they donate.

This year’s CSR committee consisted of Dan Saad, Barb Yeagy, Kathleen McKenzie, Kathy Long, Shawn O’Brien, Nori Schonfelder, Karin Cress, Richard Le June, and Stephanie LaPouttre. Our hats are off to Tata Technologies and to the CSR Committee for the wonderful work that they do there. This truly is Holiday Spirit in action!
Secondly I want to talk about the annual Holiday Extravaganza held in Pontiac the first Saturday in December every year. This was the first time my husband Dubrae and I were part of the planning committee for the parade. I didn’t know what to expect, I hadn’t attended any of the parades from previous years.

I must say that I was amazed and even excited to have been a part of such a well-run event. I was also surprised to see that neighboring cities were part of the festivities. Elected officials including Maureen Hammon Mayor Pro-Tem of Auburn Hills, Art McClellan President of Pontiac City Council, Supervisor Carl W. Solden from Waterford, and Supervisor Mike Kowall from White Lake Township were featured participants in the parade. There was something for everyone, clowns, plenty of floats and large balloons, many which were donated by the Parade Company of Detroit. School bands, churches, civic groups, and much, much more helped to make the day’s festivities complete.

I was also was impressed by the spirit of co-operation that was evident throughout the day. Kudus to Linda Zabik and the rest of the parade committee for a job well done! At a time when there’s not a lot to celebrate with the state of our economy and the trouble that’s plaguing our governments and schools we need beacons of hope like this. It lets us know that we really are in this together and that brotherhood is very much alive and well, even in the city of Pontiac.


Thank you for your support of the Stomp Out Stigma program. We hope that you have gained valuable information that can help in erasing stigma and look forward to seeing you at one of our upcoming events. If you have any comments or questions about The STOMP!, please contact us at lfarwell@cnsmi.org

In This Issue

Mental Health

New Team Member /
Success Story

CMH Corner

Team Update

Stigma In Action

Guest Columnist


NEED Help in a CRISIS?

In Oakland County, MI:icon
Common Ground
Sanctuary
24 hr. Crisis Line
800-231-1127

National Hopeline Network
24 hour Crisis Center
800-784-2433

Anti-Stigma Team
Upcoming Events

January 21, 2009
St. Joseph Mercy-Oakland Behavioral Health
Day Program
Non-public event

January 30, 2010
Community Workers
Association
Detroit, MI
Non Public Event

February 9, 2010
Michigan State University
Psychology Building
E. Lansing, MI
Non Public Event

February 10, 2010
Oakland County Community Mental Health Authority
New Hires Orientation
Auburn Hills, MI
Non Public Event


“Unlocking the Mind”
on CMN TV

This month we will be showing
The Award-winning video Did You Know
Comcast Ch.52
WOW! Ch. 18
Tuesdays 2:30 pm
Wednesdays 6:30 pm


Get a copy of our VIDEO!!
“Did You Know?”

movieThe video is filled with stories from people who have had a first hand knowledge of what it like to live with a mental illness and how stigma personally affects them. Designed to help promote awareness of
mental health issues, the film could be used at trainings, group meetings or in the classroom.


**$10.00 suggested donation


Contact: mmaisha@cnsmi.org

Do you have a story or article
You would like to see in
The Stomp?
Contact Laura Farwell at:
lfarwell@cnsmi.org
Or call 248-745-4900 x1035

 

Quotations from
Martin Luther King, Jr.
to encourage us on our quest to “Stomp Out Stigma”:

“Our lives begin to end the day we become silent about things that matter.”

“Like an unchecked cancer, hate corrodes the personality and eats away its vital unity. Hate destroys a man's sense of values and his objectivity. It causes him to describe the beautiful as ugly and the ugly as beautiful, and to confuse the true with the false and the false with the true.”

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

CMH
cns
CNS Waterford:
279 Summit Drive
Waterford, MI 48328
248-745-4900 x 1058
CNS Farmington Hills:
38855 Hills Tech Drive
Farmington Hills, MI 48331
248-994-8001

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